Author: James Frank

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Christmas for Clara Boleyn

Hi Clara, I can only imagine your Christmas this year. Wishing to share these soon.

Frozen Pez for Clara

I had to share this with you, Clara. I had PEZ dispensers at your age and loved them.

Game of Life

This game was one of your Mom’s favorites. She would take the path that allowed her to have more kids in her car. It was never about the money. It was about the love she could give to her children. What an incredible girl, woman, mother. She knew her purpose deep inside at a very early age. Respect!

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Growing up with CF

Growing up with CF is what Mary did. Every day, sometimes multiple times in a day, Mary was required to “do a mask” treatment. After each inhalation treatment, I would put Mary upside down on my lap and “clap” her back and upper chest to loosen the mucus in her lungs so she could cough it up.

I addition, Mary took Cotezym to help her digest her food. She could not leave the house without the meds. Her teachers in school knew to help remind her to take her meds before eating.

This one of the earliest pictures of Mary having her mask treatment while playing Nintendo with step-brother Michael.

Mary Boleyn (Frank) with CF mask treatment
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Happy Birthday Mary Boleyn 2019

Mary loved her birthdays. The celebrations began early in the morning. Numerous times she gathered friends to a party. Her passion for life and celebrating every day was infectious to many. Her example of purpose went far beyond her years. It came from a deep perception of her CF journey that was unique, honorable, and an example to follow.