Mary Boleyn & DAD

Mary Boleyn & James Wm Frank

Mary was this age when we flew to Disney World from Buffalo. At the US Immigration, each person was required to respond to the officer by themselves. The officer asked Mary if I was her father and if I had her mother’s permission to leave Canada? Mary looked at me, questioningly. I informed the officer I had shared custody and didn’t require written permission from her mother. When he looked at me with a side glance, I said, do you want to tell this little girl she is not going to be allowed to go to Disney World? He said nothing and looked at his computer screen. Suddenly, he asked Mary where she was going with her Dad. She quipped we’re going to a father-daughter-look-alike contest. He had to smile and pass us through. People often remarked how we looked so much alike.

Missing you every hour of every day. DAD

Clara Boleyn, call Opa

Happy Birthday 37, Mary

What a year this has been. You would have been very concerned for your health and Clara. As always, I missed you sometimes more than I can bear. I turn around to see if you’re not there. I hear your voice calling out DADDY. As long as I’m living my baby you’ll be. As long as I’m living and breathing, my baby you’ll be.

Clara. Here is a gallery of pics of your Mom. Love you to the moon and back, Clara.

Growing up with CF

Growing up with CF is what Mary did. Every day, sometimes multiple times in a day, Mary was required to “do a mask” treatment. After each inhalation treatment, I would put Mary upside down on my lap and “clap” her back and upper chest to loosen the mucus in her lungs so she could cough it up.

I addition, Mary took Cotezym to help her digest her food. She could not leave the house without the meds. Her teachers in school knew to help remind her to take her meds before eating.

This one of the earliest pictures of Mary having her mask treatment while playing Nintendo with step-brother Michael.

Mary Boleyn (Frank) with CF mask treatment

Happy Birthday Mary Boleyn 2019

Mary loved her birthdays. The celebrations began early in the morning. Numerous times she gathered friends to a party. Her passion for life and celebrating every day was infectious to many. Her example of purpose went far beyond her years. It came from a deep perception of her CF journey that was unique, honorable, and an example to follow.

Fun Facts About Mary

Did you know Mary loved to eat at Mongolian Grill? It is a restaurant where you load up a bowl with a selection of meat and veggies and toppings. Then you take that to a cook who puts in on a giant circular grill and mixes it over the heat until perfectly created.

Mary loved to pile it as high with meat as she could because she wanted to eat as many calories as possible to help offset her CF. Her entire life, she had a strong purpose to care for herself. Not an easy feat when you know the outcome in advance.

Mary was courageous beyond the average person. She kept her goals mostly to herself. She would let everyone know when she wanted something when ready. A very loving spirit her entire life.

Miss you sometimes more than I can bear.