Category: Notes to Clara

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Transition Day 2020

Three years ago, today, you said your last words, I love you. Thank you. What a blessing you gave me. From beginning to end, we stayed the course. Your bravery, courage, love, stamina, and many more accolades than cannot be written in such a short space, are the truest examples of the Power of Purpose. You lived it as you created it, full of fun and laughter. Your happiness will be remembered in many, many ways.

Star Dust to all!

I have begun to collaborate with some incredible CFers in the US. Both are transplants. Both beautiful people, full of life, and passion. You would really love them.

I met Isabel through a CF grievance group I joined. That was an incredible experience. Eight weekly Zoom calls with several parents of CFers, twin sister of CFer, best friend and CFer herself, and the wife of a CFer. One of the biggest outtakes for me was the agreement that hospice care is essential to CFers, and the world in general.

Walking each other home
Father’s Love
Mother’s Love
Mary’s Desire
Mary’s Wish
Looking TaDa. Ready to try on the gowns
Always Daddy’s Delight
Opa Love
Best Friend Love – Pankaj flew in for Mary’s last day
Mary’s Passion to Life
Making every moment TaDa!
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Three Years Missing You

Hi Mary;

It has been three long years since you arrived at RDU in a wheel chair. So much has happened.

This picture is something I manifested in my head, to see a baby fawn at your memorial. This happened a couple of days back. I was so fortunate to get a picture taken through the screened-in porch where we spent time together.

I think it is so fitting that the mother and fawn were together, like you and Clara. I know you are near. Love you as big as I can reach.

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Excuse Me

I found this today and knew you would love it. Great things happened this week with Mary Boleyn Hospice Foundation Inc. I made contact with a person involved with CFF in palliative care and sent her, Dr. Elizabeth Dallon, a set of Heart TaDa mugs.

I also sent 12 Heart TaDa mugs to the Davies Project in Lansing, MI as recognition from Rapidgo Driver to their volunteer drivers. We are calling them “Heartfelt Thanks”.

I am working on a lifetime award for contributors to the hospice foundation. I am thinking: Lifetime Contribution Award for exemplary contribution to the foundation or CF. I will include Pankaj Chand, who flew from Canada to be with Mary during her final hours and Mary Mount, without whom we would not have had the Allimance-Caswell County Hospice care we all needed at the time of your transition.

Missing you sometimes more than I can bear.

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Christmas for Clara Boleyn

Hi Clara, I can only imagine your Christmas this year. Wishing to share these soon.

Frozen Pez for Clara

I had to share this with you, Clara. I had PEZ dispensers at your age and loved them.

Game of Life

This game was one of your Mom’s favorites. She would take the path that allowed her to have more kids in her car. It was never about the money. It was about the love she could give to her children. What an incredible girl, woman, mother. She knew her purpose deep inside at a very early age. Respect!

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Growing up with CF

Growing up with CF is what Mary did. Every day, sometimes multiple times in a day, Mary was required to “do a mask” treatment. After each inhalation treatment, I would put Mary upside down on my lap and “clap” her back and upper chest to loosen the mucus in her lungs so she could cough it up.

I addition, Mary took Cotezym to help her digest her food. She could not leave the house without the meds. Her teachers in school knew to help remind her to take her meds before eating.

This one of the earliest pictures of Mary having her mask treatment while playing Nintendo with step-brother Michael.

Mary Boleyn (Frank) with CF mask treatment