Christmas memorial decorated for Christmas this year. Just four more sleeps till Christmas. I hope this is the last one without Clara.
Growing up with CF
Growing up with CF is what Mary did. Every day, sometimes multiple times in a day, Mary was required to “do a mask” treatment. After each inhalation treatment, I would put Mary upside down on my lap and “clap” her back and upper chest to loosen the mucus in her lungs so she could cough it up.
I addition, Mary took Cotezym to help her digest her food. She could not leave the house without the meds. Her teachers in school knew to help remind her to take her meds before eating.
This one of the earliest pictures of Mary having her mask treatment while playing Nintendo with step-brother Michael.
Christmas Decorations with Mary Boleyn
Mary loved the entire idea of a holiday season. Her love of celebration always took on an even greater energy force of purpose for Christmas time.
So today, we decorated her memorial with tree decorations made by the same Cricket Forge that created her memorial.
Sometimes I miss you more than I can bear. I turn around to see if you’re not there. Love you this much. As big as I can reach and more.
A Smile is not a smile
Thinking of You, Clara, on Your Mom’s Birthday
Happy Birthday Mary Boleyn 2019
Mary loved her birthdays. The celebrations began early in the morning. Numerous times she gathered friends to a party. Her passion for life and celebrating every day was infectious to many. Her example of purpose went far beyond her years. It came from a deep perception of her CF journey that was unique, honorable, and an example to follow.
TaDa Recognition cards for products
Hey Mary, Two More Sleeps – Remembered Always
Believe in Yourself
Seven More Sleeps Mary, until…
You loved the Fall. It reminded you of your birthday coming up. When you were young, we would put up birthday decorations for you, Miranda, and Michael near Miranda’s Oct 8th, I think, and leave them up until Dec 27 for Michaels. His was a month after yours on November 27th.
Love you this……………much. As big as I can reach.